The Folia Blog
[Updated Aug 14, 2021] Should I get the COVID-19 vaccine?
Feeling a bit overwhelmed by all the vaccine news lately? See below for a Folia digest on the latest and greatest information on COVID-19 vaccines, focused on what you need to know to make an informed choice. Featuring info on immune deficiencies, side-effects, and differences between the vaccines.
Convalescent Plasma Therapy: How COVID-19 is Shedding Light on Plasma Shortages
As blood donation centers are scaling up their ability to accept convalescent plasma donations, we've assembled resources for how you can help, regardless of whether you have contracted coronavirus:.
Coming together over Corona
Paul, an adult living with CVID and the original inspiration for Folia, shares how the self-quarantine has brought him opportunity for connection.
Grounded in understanding my chronic condition
Anna is a student researcher at Tufts University, an aspiring physician, and an adult living with primary immunodeficiency. In this blog, Anna shares with Rebekah what has grounded her as she navigates life with a recent diagnosis of her specific mutation.
New Name, New Routine, and a New Village of Support in the PI Community
Ashley is mom to Finn, who was diagnosed with PI in April 2019. In this blog post, she shares with Rebekah her initial reactions to Finn’s diagnosis, drive to the appointments, Infusion Thursdays, and the village of support.
Back to School: College and Grad School Edition
Paul, an adult with PI, draws from his experience attending college and starting law school to share six great tips for navigating higher education while managing a condition. Best of luck in your law school adventure, Paul!
Calling all plasma-donating superheroes
Earlier this month, reports began to circulate on the mounting crisis of immunoglobulin shortages. We’ve heard from some of our PI users that IG supplies have been rationed. The Immune Deficiency Foundation released this plea to hospital-based providers and prescribers.
Helen and Nell, and how tracking can lead to better outcomes
Helen is the mother of seven children, several of who have chronic conditions. One of her children happens to be Folia Health’s founder and CEO, Nell Meosky Luo. This inaugural vlog chronicles how Helen’s tracking of her oldest son’s home reported outcomes led to better care and was happened to provide the inspiration for the birth of this company.
Helen, mom of 7 and superhero caregiver
June 19, 2017
Helen and her husband, Paul, have seven kids, several of whom have chronic conditions. Their oldest son, Paul, has Common Variable Immune Deficiency, a condition that makes it difficult for him to fight off infections on his own. This interview will focus on Helen's experience learning to navigate the care for Paul's condition.