Caregiver Chronicles The Folia Health Research Team Caregiver Chronicles The Folia Health Research Team

Parenting in the time of Coronavirus: What CF can teach the general public

Coronavirus has created a new normal: social distancing, childcare disruptions, self quarantining, constant hand sanitizing, and risk levels changing by the hour. However, many of these experiences are the everyday reality of people living with underlying health conditions.

Myra, mom to two children with CF, shares some of the wisdom she has acquired over the years, and what she hopes people take away from this experience to help everyone live a healthier life.

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Caregiver Chronicles, Patient Stories Nell Meosky Luo Caregiver Chronicles, Patient Stories Nell Meosky Luo

Susan & Ted, moving past CF to find a beautiful life

Susan and Ted are a Portland, Maine-based couple with two grown daughters. Hogan, their younger daughter, was diagnosed with CF at age 3. She's now a thriving college student who has lived a remarkably normal life, not defined by her disease. In this post, Susan and Ted share memorable moments of their CF parent journey, and everything that they have learned along the way. 

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Caregiver Chronicles, About Folia Nell Meosky Luo Caregiver Chronicles, About Folia Nell Meosky Luo

Helen, mom of 7 and superhero caregiver

June 19, 2017

Helen and her husband, Paul, have seven kids, several of whom have chronic conditions. Their oldest son, Paul, has Common Variable Immune Deficiency, a condition that makes it difficult for him to fight off infections on his own. This interview will focus on Helen's experience learning to navigate the care for Paul's condition. 

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