While COVID-19 continues to be a concern for people with underlying health conditions, hospitals are starting to schedule the backlog of appointments that have been on hold since March.

If you need medical care that cannot be delivered via telehealth appointment, here are some tips from Nell’s and Christina’s recent hospital visits.

Rebekah, the fifth member of the Folia team, reflects on her first year at Folia and shares what she learned from working with patients and caregivers as a User Success Specialist.

In our second blog post on privacy, we tackle the topic that the entire health care industry has stayed quiet on: sharing data with Facebook. We cover how Facebook advertising works, how your health apps may be sharing your data with Facebook, and what you can do about it.

But the responsibility of safeguarding your health data shouldn’t lie entirely on your shoulders. We’re challenging all digital health companies to step up.

With data privacy once again coming into the spotlight, we developed Your Privacy Checklist to help you navigate the complex world of health apps, so you can be in the driver’s seat for your health data.

As blood donation centers are scaling up their ability to accept convalescent plasma donations, we've assembled resources for how you can help, regardless of whether you have contracted coronavirus:.

Coronavirus has created a new normal: social distancing, childcare disruptions, self quarantining, constant hand sanitizing, and risk levels changing by the hour. However, many of these experiences are the everyday reality of people living with underlying health conditions.

Myra, mom to two children with CF, shares some of the wisdom she has acquired over the years, and what she hopes people take away from this experience to help everyone live a healthier life.

Paul, an adult living with CVID and the original inspiration for Folia, shares how the self-quarantine has brought him opportunity for connection.

Breck, a CF mom, shares practical tips on navigating coronavirus with an underlying health condition and surviving a self quarantine.

Lynsey, mom to 18-month-old Landon, shares how tracking on Folia ends each day with a boost of positivity, enables her to precisely tell their whole story, and provides a way to give back to the CF community. She is hopeful about the future of healthcare which taps into the perspectives of patients and caregivers at home.

Anna is a student researcher at Tufts University, an aspiring physician, and an adult living with primary immunodeficiency. In this blog, Anna shares with Rebekah what has grounded her as she navigates life with a recent diagnosis of her specific mutation.

Ashley is mom to Finn, who was diagnosed with PI in April 2019. In this blog post, she shares with Rebekah her initial reactions to Finn’s diagnosis, drive to the appointments, Infusion Thursdays, and the village of support. 

Christina, Head of Growth of Folia Health, shares about her family’s recent hospitalization.

Maureen Meosky is the sister of Nell and Paul and recently moved to Boston to start her college career. She joins us today to give a family member’s perspective on rare disease and today’s hearing on Bill H.1934.

Breck, a CF mom and author of In It for Bennett: Our Journey with Cystic Fibrosis, has been part of the Folia community since June 2018. In this blog post, she shares with Rebekah their one-year update, advice for new families, and tracking in sickness and health. 

We proudly announce that today we become, to our knowledge, the very first digital health company to recognize the enormous contributions that patients and caregivers can make to our collective healthcare dataset through a data dividend.

Economists have been making lots of noise lately about what digital data ownership means.

Emily, an adult living with CF, talks about her changing relationship with exercise

Paul, an adult with PI, draws from his experience attending college and starting law school to share six great tips for navigating higher education while managing a condition. Best of luck in your law school adventure, Paul!

Earlier this month, reports began to circulate on the mounting crisis of immunoglobulin shortages. We’ve heard from some of our PI users that IG supplies have been rationed. The Immune Deficiency Foundation released this plea to hospital-based providers and prescribers.

Celeste talks about her experience traveling across the world while managing her cystic fibrosis.