An app to help you manage your PNH and contribute to important research.

Folia is the free health journaling app that you can make uniquely yours — designed to help you get better care and help researchers develop better PNH treatments.

Our latest PNH Talk with PNH expert and leading PNH researcher, Dr. David Dingli

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Why join Folia?

Folia makes it easy to track symptoms, treatments, and flares so you can see how your health is trending over time. Plus, you can opt into research and earn money for your contribution to PNH research.

Download the Folia app and use invite code “PNHRESEARCH”

Track symptoms, treatments, and flares, and discover key trends over time.

You can choose to share with your care team so they can understand the full picture of your health, not just what you’re feeling at your appointment.

Help researchers better understand what it’s really like living with PNH and develop better treatments.

Do you want to be a part of meaningful PNH research?

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Contribute to research and get the care you deserve.

Download the Folia app and use invite code “PNHRESEARCH”