9 Years of Folia Health
Yesterday marked nine years since Folia Health was incorporated, and in nearly a decade, we’ve been busy. What started as a simple idea—making it easier for patients and caregivers to track their health—has grown into something much bigger.
The Story Behind Folia
Folia was born from a deeply personal experience. Before we ever built a platform, we saw firsthand how valuable patient-tracked health data could be. Our founder watched as her mother meticulously recorded years of medical information while caring for her brother. That information was crucial, but keeping it organized and accessible was a challenge.
💡 That’s where the idea for Folia came in—to create a tool that makes it easier for patients and caregivers to track their health and use their data in meaningful ways.
Advancing Research Through Home-Reported Outcomes
Since launching, Folia has helped drive patient-led research in a way that puts real-world experiences at the forefront.
📊 By the numbers:
8 research initiatives launched, with the 9th and 10th launching in Spring 2025
Research in sickle cell disease, cystic fibrosis, eczema, and Prader-Willi syndrome
Current initiatives in high triglycerides, IgAN, and PNH, with C3G and another in eczema launching soon
What Research Participants Are Saying:
“Absolutely this is such a valuable tool. I get excited about feeling more in control of my health. I will continue using this app in the future [after the study ends], very much so. I am currently dependent on this.”
“Folia has helped me stay on top of things and recount how I’m feeling.”
But Folia isn’t just for research participants—anyone can use it.
A Tool for Everyone
Folia was designed for research, but it’s now a tool for anyone who wants to take charge of their health, whether or not they’re part of a study.
📈 Our Impact Beyond Research:
Our Net Promoter Score (NPS) jumped from 31 in 2023 to 43 in 2025
Thousands of patients and caregivers are using Folia to track symptoms, treatments, and progress over time
What General Users Are Saying
“This app has been a godsend! It has made tracking my eczema for my dermatologist no longer a chore. It’s super user-friendly and also has made charting daily symptoms a breeze. THANKS FOLIA!”
“I love the way you can individualize this app! This app gives me so many ways to track changing symptoms and treatments and to be able to see the relationship between the two over time. I so appreciate the thoughtful way Folia has been created.”
