While COVID-19 continues to be a concern for people with underlying health conditions, hospitals are starting to schedule the backlog of appointments that have been on hold since March.

If you need medical care that cannot be delivered via telehealth appointment, here are some tips from Nell’s and Christina’s recent hospital visits.

Rebekah, the fifth member of the Folia team, reflects on her first year at Folia and shares what she learned from working with patients and caregivers as a User Success Specialist.

In our second blog post on privacy, we tackle the topic that the entire health care industry has stayed quiet on: sharing data with Facebook. We cover how Facebook advertising works, how your health apps may be sharing your data with Facebook, and what you can do about it.

But the responsibility of safeguarding your health data shouldn’t lie entirely on your shoulders. We’re challenging all digital health companies to step up.

With data privacy once again coming into the spotlight, we developed Your Privacy Checklist to help you navigate the complex world of health apps, so you can be in the driver’s seat for your health data.

As blood donation centers are scaling up their ability to accept convalescent plasma donations, we've assembled resources for how you can help, regardless of whether you have contracted coronavirus:.

Christina, Head of Growth of Folia Health, shares about her family’s recent hospitalization.

Maureen Meosky is the sister of Nell and Paul and recently moved to Boston to start her college career. She joins us today to give a family member’s perspective on rare disease and today’s hearing on Bill H.1934.

We proudly announce that today we become, to our knowledge, the very first digital health company to recognize the enormous contributions that patients and caregivers can make to our collective healthcare dataset through a data dividend.

Economists have been making lots of noise lately about what digital data ownership means.

Earlier this month, reports began to circulate on the mounting crisis of immunoglobulin shortages. We’ve heard from some of our PI users that IG supplies have been rationed. The Immune Deficiency Foundation released this plea to hospital-based providers and prescribers.

Christina, the newest member of the Folia team, shares her experience as a caregiver and what moved her to join the company.

At Folia, we don’t like the term “treatment adherence.” Yes, it’s a standard term across the healthcare ecosystem, and is definitely an improvement on the old “treatment compliance.” However, the concept of adherence still suggests a paternalistic line of thinking, that people who don’t follow prescribed treatment plans must be irresponsible, lazy, defiant, or indifferent.

The future of precision care is up to you, and it’s easier to help than you think.

We are excited to share an exciting milestone: you have answered more than 100,000 questions!

The 100,000 questions represent a body of knowledge that was previously inaccessible to clinics and unable to be used by researchers to find a cure for cystic fibrosis. Your knowledge matters.

Let’s harness the power of your many observations and take the next big step toward data-driven care.

Helen is the mother of seven children, several of who have chronic conditions. One of her children happens to be Folia Health’s founder and CEO, Nell Meosky Luo. This inaugural vlog chronicles how Helen’s tracking of her oldest son’s home reported outcomes led to better care and was happened to provide the inspiration for the birth of this company.

Medicine’s Machine-Learning Craze Is Only Useful If It’s Built on a Decent Data

June 19, 2017

Mercedes is a full-time professional and mom of two children, ages 2 and 5. Her oldest, Mila, has Down Syndrome, and Mercedes has spent the past five years becoming an expert in helping her daughter to meet and exceed all expectations set for her.

June 19, 2017

Helen and her husband, Paul, have seven kids, several of whom have chronic conditions. Their oldest son, Paul, has Common Variable Immune Deficiency, a condition that makes it difficult for him to fight off infections on his own. This interview will focus on Helen's experience learning to navigate the care for Paul's condition.