Your Stories

The power of community is especially present. Patients and caregivers in the Folia community share their wisdom on infection control, managing their chronic conditions, and how to not just survive but thrive during this time of heightened precautions.

Myra: Parenting in the time of Coronavirus: What CF can teach the general public

“People are now looking at life through the lens of a CF family where, despite doing everything you needed to do, things happen outside of your control that cause you to cancel your plans last minute, or have react in order to manage risks. Any risk weighs on you a lot more.”

Paul: Coming together over Corona

“For this CVID young adult, I’m pleasantly surprised by how social distancing has actually brought me closer to friends across the world.”

Breck: Figuring Out How to Keep Bennett Safe Through the Coronavirus

“Preparing for a self-quarantine is one thing. Experiencing it is another. It's very easy to get cabin fever and even feel depressed.

So here are some of the things I learned during our first quarantining experience that helped us cope being at home (and a few other tips I plan to put in to place this time around).”