The Folia Blog
Reflecting on a Community Coming Together
As Folia continues to grow, we recognize the importance of our users’ knowledge.
COVID-19 in August 2021: Vaccine updates, booster shots, and the delta variant
COVID-19 update on vaccines, booster shots, immunocompromised decisions, and more.
[Updated Aug 14, 2021] Should I get the COVID-19 vaccine?
Feeling a bit overwhelmed by all the vaccine news lately? See below for a Folia digest on the latest and greatest information on COVID-19 vaccines, focused on what you need to know to make an informed choice. Featuring info on immune deficiencies, side-effects, and differences between the vaccines.
You Know Your Own Body: Diagnostic Odyssey of Autoimmune Conditions
Katie has a background in gerontology and psychology. During her long diagnostic journey, she has learned to advocate for herself with the support of others.
Tips for a safe hospital visit during the COVID-19 pandemic
While COVID-19 continues to be a concern for people with underlying health conditions, hospitals are starting to schedule the backlog of appointments that have been on hold since March.
If you need medical care that cannot be delivered via telehealth appointment, here are some tips from Nell’s and Christina’s recent hospital visits.
No textbooks can teach what Folia users taught me
Rebekah, the fifth member of the Folia team, reflects on her first year at Folia and shares what she learned from working with patients and caregivers as a User Success Specialist.
How are health apps sharing my data with Facebook?
In our second blog post on privacy, we tackle the topic that the entire health care industry has stayed quiet on: sharing data with Facebook. We cover how Facebook advertising works, how your health apps may be sharing your data with Facebook, and what you can do about it.
But the responsibility of safeguarding your health data shouldn’t lie entirely on your shoulders. We’re challenging all digital health companies to step up.
Is my data protected? Questions to ask before downloading that health app
With data privacy once again coming into the spotlight, we developed Your Privacy Checklist to help you navigate the complex world of health apps, so you can be in the driver’s seat for your health data.
Convalescent Plasma Therapy: How COVID-19 is Shedding Light on Plasma Shortages
As blood donation centers are scaling up their ability to accept convalescent plasma donations, we've assembled resources for how you can help, regardless of whether you have contracted coronavirus:.
Parenting in the time of Coronavirus: What CF can teach the general public
Coronavirus has created a new normal: social distancing, childcare disruptions, self quarantining, constant hand sanitizing, and risk levels changing by the hour. However, many of these experiences are the everyday reality of people living with underlying health conditions.
Myra, mom to two children with CF, shares some of the wisdom she has acquired over the years, and what she hopes people take away from this experience to help everyone live a healthier life.