Eddie’s life has been an adventure. His diagnoses of Multiple Sclerosis and Pulmonary Fibrosis are not stopping him from seeking the joy in every day.

What is it actually like to participate in a clinical trial? What do other people who have participated in trials think about the whole ordeal?

Katie has a background in gerontology and psychology. During her long diagnostic journey, she has learned to advocate for herself with the support of others.

Paul, an adult living with CVID and the original inspiration for Folia, shares how the self-quarantine has brought him opportunity for connection.

Anna is a student researcher at Tufts University, an aspiring physician, and an adult living with primary immunodeficiency. In this blog, Anna shares with Rebekah what has grounded her as she navigates life with a recent diagnosis of her specific mutation.