Eddie’s life has been an adventure. His diagnoses of Multiple Sclerosis and Pulmonary Fibrosis are not stopping him from seeking the joy in every day.

What is it actually like to participate in a clinical trial? What do other people who have participated in trials think about the whole ordeal?

Katie has a background in gerontology and psychology. During her long diagnostic journey, she has learned to advocate for herself with the support of others.

Paul, an adult living with CVID and the original inspiration for Folia, shares how the self-quarantine has brought him opportunity for connection.

Anna is a student researcher at Tufts University, an aspiring physician, and an adult living with primary immunodeficiency. In this blog, Anna shares with Rebekah what has grounded her as she navigates life with a recent diagnosis of her specific mutation.

Emily, an adult living with CF, talks about her changing relationship with exercise

Paul, an adult with PI, draws from his experience attending college and starting law school to share six great tips for navigating higher education while managing a condition. Best of luck in your law school adventure, Paul!

Celeste talks about her experience traveling across the world while managing her cystic fibrosis.

Celeste writes about her experience with transitioning to college.

We are excited to feature Ron’s story of how his cystic fibrosis diagnosis in his 40s answered some questions he had his whole life. Thank you, Ron, for inspiring us with your message of positivity and for your service to our country and your community!

Celeste is a busy, happy UT Austin student studying public health. She’s also a CF patient, and a Folia intern. In this post, Celeste shares her plans for a healthy, successful, and exciting 2019!

Susan and Ted are a Portland, Maine-based couple with two grown daughters. Hogan, their younger daughter, was diagnosed with CF at age 3. She's now a thriving college student who has lived a remarkably normal life, not defined by her disease. In this post, Susan and Ted share memorable moments of their CF parent journey, and everything that they have learned along the way.